Endometriosis UK are recruiting new Volunteer Advocates

Endometriosis UK are recruiting new volunteers for our advocacy service. Launched in Autumn 2015, the service has been inundated with requests for advocacy support and we desperately need more volunteers to help those women who need it the most.

Advocates are trained to give support and guidance in,

Endometriosis and one woman's fight to the WBFF Championship

My endometriosis story began at the age of 11 when my periods started. I would bleed for 3 weeks, with one week break. This cycle was continuous and very tiring. I was put on the pill to try to regulate my cycle; different oral forms were tried with little improvement. My periods were very painful and heavy - it wasn’t easy dealing with this at such a young age. Later on in my teenage years I was transferred onto the depo injection which seemed to help my symptoms, but things still clearly weren’t ‘normal’.

The impact of endometriosis on a woman’s social life

Endometriosis can be incredible isolating. Here, two of our volunteers share their experiences of the effect of endometriosis on their social lives.

Rhiannon is the group leader of our Tunbridge Wells support group. She was diagnosed with endometriosis after struggling throughout secondary school. Here, she discusses how endometriosis has impacted on her social life.

“At 19, being diagnosed with Endometriosis felt like the worst thing in the world.

The impact of endometriosis on a woman’s fertility

Simonne is a volunteer helpliner and has been affected by endometriosis for twenty-five years. She was diagnosed by laparoscopy and discusses the impact of endometriosis and fertility below.

The impact of endometriosis on a woman’s education

Becca was diagnosed with endometriosis in 2010, after suffering throughout her teenage years. She is co-leader of our Southampton Support Group and talks about how endometriosis impacted on her education.

The impact of endometriosis on mental health

Leanda attends our Bristol support group and has a wide range of experience of endometriosis. She has suffered the effects of endometriosis for thirty years, and wasn’t diagnosed until she was 27. Leanda talks below about the impact of endometriosis on her mental health.

The impact of endometriosis on a woman’s career

Rosemarie is both a volunteer support group leader and advocate with Endometriosis UK. She balances her voluntary work with a busy legal career, and discusses how this has been affected by endometriosis.

Announcing new Patient Leader role for Carol Pearson

Carol Pearson will become Endometriosis UK’s first Patient Leader, an exciting new volunteer role for the organisation.  Carol has stepped down from Endometriosis UK's Board of Trustees where she was a Trustee from 2008 - 2010 and 2011 – 2015, and served as Treasurer.

Carol has worked with the Endometriosis UK team to develop a new volunteer Patient Leader role for the organisation, ensuring that the voice of those with lived experience of endometriosis continues to shape our work.

Statement on 'Tampon Tax'

Endometriosis UK welcomes the Government's commitment in this week's Autumn Statement to setting up a £15m fund for women's charities. 


Giving Tuesday is an opportunity to come together to show the world why it’s good to give. 


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