Help improve speed of diagnosis for endometriosis - please complete this survey

The Welsh Government want to see the length of time to diagnosis decrease - currently it takes a shocking 7.5 years on average to get a diagnosis of endometriosis in the UK. It’s a great ambition, please fill in this survey to help them. 

Stop treating periods like a dirty secret; teach menstrual wellbeing in schools

Alice Smith, Trustee and Young Ambassador for Endometriosis UK is passionate about getting Menstrual Wellbeing taught in schools.


“I'm 22, and for over 5 years, my periods ruined my life. I missed school regularly and suffered debilitating pain. Appointment after appointment, I was told this was completely normal. It was only later that I was finally diagnosed with endometriosis. So far, I’ve been hospitalised, had one surgery and I’m waiting for another.

NICE call for improved diagnosis and management of endometriosis

New NICE guidelines to improve diagnosis and management of endometriosis highlight the current unacceptable delays – a shocking 7.5 years on average. These delays can result in prolonged pain and make future treatment more difficult. The new guidelines pave the way for improved support and treatment for women with endometriosis.

Endometriosis UK welcomes four new trustees

Four new trustees have been appointed to Endometriosis UK, joining the Board of Trustees led by chair Angela Style. They bring a significant range of skills, knowledge and experience to the Board, including communications, campaigning, primary and secondary healthcare.

It takes an average 7.5 years to get a diagnosis of endometriosis - it shouldn't

Despite costing the UK economy £8.2 billion annually, being the second most common gynaecological condition in the UK and affecting 1 in 10 women in the UK (1.5 million), it still takes shocking average of 7.5 years to get diagnosed with endometriosis.
Endometriosis UK is calling for shorter diagnosis time to ensure better health and life outcomes for women affected. There is no cure for endometriosis, and it can only be diagnosed through surgery (laparoscopy). But having a diagnosis enables women to:

Are you due to have a laparoscopy for symptoms suggestive of endometriosis?

Are you due to have a laparoscopy for symptoms suggestive of endometriosis?

Many women with endometriosis are treated surgically but symptoms can recur in just under half of them. Clinicians are uncertain about how best to prevent this.

32 hospitals throughout the UK have joined a large national clinical trial to find out if long acting progestogen treatment (either Mirena Coil® or  Depo-Provera® ) is more effective compared to the oral contraceptive pill in preventing the recurrence of symptoms and improving quality of life.

How many nurses does it take to change a delayed referral system? Guest post by Wendy Norton and Debbie Holloway

What do endometriosis Clinical Nurses Specialists (CNS) do?

Well that was what the Royal College of Nursing women’s health steering group and Endometriosis UK wanted to find out.

Endometriosis and coronary heart disease research study – response from Endometriosis UK

A recently published article on the risk of heart disease in women with endometriosis suggests that endometriosis is associated with an increased risk of coronary heart disease. This epidemiological study published in Circulation: Cardiovascular Quality and Outcomes by a group of researchers from Boston, USA was based on a 20 year follow up of more than 116,000 women included in the Nurses' Health Study II between 1989 and 2009.

Endometriosis UK are recruiting new Volunteer Advocates

Endometriosis UK are recruiting new volunteers for our advocacy service. Launched in Autumn 2015, the service has been inundated with requests for advocacy support and we desperately need more volunteers to help those women who need it the most.

Advocates are trained to give support and guidance in,

Endometriosis and one woman's fight to the WBFF Championship

My endometriosis story began at the age of 11 when my periods started. I would bleed for 3 weeks, with one week break. This cycle was continuous and very tiring. I was put on the pill to try to regulate my cycle; different oral forms were tried with little improvement. My periods were very painful and heavy - it wasn’t easy dealing with this at such a young age. Later on in my teenage years I was transferred onto the depo injection which seemed to help my symptoms, but things still clearly weren’t ‘normal’.


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