The impact of endometriosis on a woman’s social life

Endometriosis can be incredible isolating. Here, two of our volunteers share their experiences of the effect of endometriosis on their social lives.

Rhiannon is the group leader of our Tunbridge Wells support group. She was diagnosed with endometriosis after struggling throughout secondary school. Here, she discusses how endometriosis has impacted on her social life.

“At 19, being diagnosed with Endometriosis felt like the worst thing in the world.

The impact of endometriosis on a woman’s fertility

Simonne is a volunteer helpliner and has been affected by endometriosis for twenty-five years. She was diagnosed by laparoscopy and discusses the impact of endometriosis and fertility below.

The impact of endometriosis on a woman’s education

Becca was diagnosed with endometriosis in 2010, after suffering throughout her teenage years. She is co-leader of our Southampton Support Group and talks about how endometriosis impacted on her education.

The impact of endometriosis on mental health

Leanda attends our Bristol support group and has a wide range of experience of endometriosis. She has suffered the effects of endometriosis for thirty years, and wasn’t diagnosed until she was 27. Leanda talks below about the impact of endometriosis on her mental health.

The impact of endometriosis on a woman’s career

Rosemarie is both a volunteer support group leader and advocate with Endometriosis UK. She balances her voluntary work with a busy legal career, and discusses how this has been affected by endometriosis.

Announcing new Patient Leader role for Carol Pearson

Carol Pearson will become Endometriosis UK’s first Patient Leader, an exciting new volunteer role for the organisation.  Carol has stepped down from Endometriosis UK's Board of Trustees where she was a Trustee from 2008 - 2010 and 2011 – 2015, and served as Treasurer.

Carol has worked with the Endometriosis UK team to develop a new volunteer Patient Leader role for the organisation, ensuring that the voice of those with lived experience of endometriosis continues to shape our work.

Statement on 'Tampon Tax'

Endometriosis UK welcomes the Government's commitment in this week's Autumn Statement to setting up a £15m fund for women's charities. 


Giving Tuesday is an opportunity to come together to show the world why it’s good to give. 

Women need a National Strategy for endometriosis

Endometriosis UK calls for the Government to create a National Strategy for this long term condition.

This will set quality standards for endometriosis care. It will set out a clear clinical pathway for patients who have endometriosis.

The National Strategy will reduce diagnosis time, raise awareness of the condition and improve the quality of services. It will promote a multi-disciplinary approach, support patients to take an active part in their care and develop an evidence base to improve outcomes.

Endometriosis makes Front Page News

Endometriosis UK is delighted that The Guardian is raising awareness of this little known but common and life-changing disease, and supports its comments on the lack of funding for treatment and support.


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