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Policy & Campaigns

Endometriosis UK is dedicated to campaigning to ensure those with endometriosis get access to the right care at the right time. 

We work with governments and healthcare systems in all four UK nations to demand change. See more information about our work in Westminster, Scotland, Wales and Northern Ireland. We also act as Secretariat for the UK Parliament All Party Parliamentary Group (APPG) on Endometriosis. We regularly campaign on specific issues, both short term and ongoing.

You can join our current campaign to call for the NICE Guideline on Endometriosis to be updated by writing to your MP here.

Will you join us in fighting for a better future for people with endometriosis?

Please complete our new survey on accessing NHS care

Is the fallout from the Covid pandemic still affecting your ability to get NHS care for your endometriosis? Please complete our new online endometriosis care survey and tell us your experience.

The information you share in the survey will help us ensure the current needs of those with endometriosis are at the centre of our campaigns and policy work.  

This survey is similar to the one that over 2,500 of you completed back in June and July 2021. Thanks to all of you who responded, we were able to help explain to policy makers and journalists how the pandemic was affecting endometriosis care.

Please consider completing this latest survey and sharing it for wider reach. Thanks as ever for your support!

Share your story

People’s personal stories are key to raising awareness of endometriosis and driving positive change for people living with the disease. Find out more

Distribute our leaflets

Download our printable leaflets here. If you would like us to send you some of our awareness leaflets through the post please contact us.