Endometriosis surgeons take on gruelling 450 mile 4 day cycle ride to raise awareness of this challenging disease

16 endometriosis specialists cycle London to Edinburgh - 5thto 8thMay 2018

On the 5th May, a group BSGE surgeons and endometriosis specialists cycled 450 miles in four days to raise money for Endometriosis UK.

Results from new study offer hope for women with endometriosis

A landmark study published in BMJ Open, has shown that keyhole surgery carried out in specialist centres can ease the pain of endometriosis and improve the quality of life for women living with the disease.

The ground-breaking study included nearly 5000 women, who had laparoscopic surgery to excise deep endometriosis, and followed their progress for two years.


Less pain and better quality of life

Help improve speed of diagnosis for endometriosis - please complete this survey

The Welsh Government want to see the length of time to diagnosis decrease - currently it takes a shocking 7.5 years on average to get a diagnosis of endometriosis in the UK. It’s a great ambition, please fill in this survey to help them. 

Stop treating periods like a dirty secret; teach menstrual wellbeing in schools

Alice Smith, Trustee and Young Ambassador for Endometriosis UK is passionate about getting Menstrual Wellbeing taught in schools.


“I'm 22, and for over 5 years, my periods ruined my life. I missed school regularly and suffered debilitating pain. Appointment after appointment, I was told this was completely normal. It was only later that I was finally diagnosed with endometriosis. So far, I’ve been hospitalised, had one surgery and I’m waiting for another.

NICE call for improved diagnosis and management of endometriosis

New NICE guidelines to improve diagnosis and management of endometriosis highlight the current unacceptable delays – a shocking 7.5 years on average. These delays can result in prolonged pain and make future treatment more difficult. The new guidelines pave the way for improved support and treatment for women with endometriosis.

Endometriosis UK welcomes four new trustees

Four new trustees have been appointed to Endometriosis UK, joining the Board of Trustees led by chair Angela Style. They bring a significant range of skills, knowledge and experience to the Board, including communications, campaigning, primary and secondary healthcare.

It takes an average 7.5 years to get a diagnosis of endometriosis - it shouldn't

Despite costing the UK economy £8.2 billion annually, being the second most common gynaecological condition in the UK and affecting 1 in 10 women in the UK (1.5 million), it still takes shocking average of 7.5 years to get diagnosed with endometriosis.
Endometriosis UK is calling for shorter diagnosis time to ensure better health and life outcomes for women affected. There is no cure for endometriosis, and it can only be diagnosed through surgery (laparoscopy). But having a diagnosis enables women to:

Are you due to have a laparoscopy for symptoms suggestive of endometriosis?

Are you due to have a laparoscopy for symptoms suggestive of endometriosis?

Many women with endometriosis are treated surgically but symptoms can recur in just under half of them. Clinicians are uncertain about how best to prevent this.

32 hospitals throughout the UK have joined a large national clinical trial to find out if long acting progestogen treatment (either Mirena Coil® or  Depo-Provera® ) is more effective compared to the oral contraceptive pill in preventing the recurrence of symptoms and improving quality of life.

How many nurses does it take to change a delayed referral system? Guest post by Wendy Norton and Debbie Holloway

What do endometriosis Clinical Nurses Specialists (CNS) do?

Well that was what the Royal College of Nursing women’s health steering group and Endometriosis UK wanted to find out.

Endometriosis and coronary heart disease research study – response from Endometriosis UK

A recently published article on the risk of heart disease in women with endometriosis suggests that endometriosis is associated with an increased risk of coronary heart disease. This epidemiological study published in Circulation: Cardiovascular Quality and Outcomes by a group of researchers from Boston, USA was based on a 20 year follow up of more than 116,000 women included in the Nurses' Health Study II between 1989 and 2009.


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