Campaigning in Wales | Endometriosis UK

Campaigning in Wales

Endometriosis UK campaigns to raise awareness and drive change for the 1 in 10 women and those assigned female at birth living with endometriosis in Wales. We do this by working with local and national Government, healthcare professionals, people with endometriosis and their support networks, employers, the public, and the media. 

In 2021, we became part of a coalition of charities working to develop a Women's Health Plan for Wales. This plan will take the form of a series of Quality Statements on Women's Health in Wales, which it is hoped will be adopted by the Welsh government in 2022. Further information about the coalition can be found here

We are currently working with the Senedd Health and Social Care Committee on their consultation on the impact of waiting times in Wales. 

Information about endometriosis in Wales

  • It takes on average 9 years to diagnose endometriosis in Wales.
  • Wales has one fully accredited endometriosis specialist centre at University of Wales Hospital in Cardiff and a second provisional endometriosis specialist centre at the Singleton Hospital in Swansea, which often results in long waiting times for specialist care. The nearest endometriosis specialist centres for those in North Wales requiring specialist care are in England and while arrangements exist for cross-border referrals, they are sometimes hard to secure.
  • Prior to Covid-19, 32% of patients in Wales were waiting more than 10 months for surgery. This is expected to be much higher following the outbreak of COVID-19
  • In 2018, the Welsh Government established an Endometriosis Task and Finish Group, which investigated the challenges faced by those with endometriosis in Wales. You can read the report produced by Group here

Menstrual wellbeing education in Wales

Since launching a petition in 2019, we have campaigned for the introduction of menstrual wellbeing educatin in schools across Wales.There have been numerous debates and motions brought forward by Assembly Members, and thanks to your efforts, the Minister has committed to menstrual wellbeing education being included within the Relationships and Sex Education component of the Curriculum. We are currently awaiting further detail of how this will be implemented. It is absolutely vital that this is implemented as a mandatory part of the new Curriuclum. Without committing to mandatory menstrual wellbeing education in schools, the next generation of young people in Wales will continue to suffer from menstrual health conditions in silence, without the knowledge or the confidence to seek help if something isn’t right. It will also mean that taboos around menstruation will continue.

Read more about the campaign via BBC News and Wales online

Our menstrual wellbeing campaign has been led by Endometriosis UK and the Fair Treatment for the Women of Wales - with support from several other organisations including the Royal College of GPs, the Royal College of Obsetricians and Gynaecologists, and Plan International. A huge thank you to all the organisations who have pledged their support.

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