Campaigning in Wales

Endometriosis UK campaigns to raise awareness and drive change for the 1 in 10 women and those assigned female at birth living with endometriosis in Wales. We do this by working with local and national Government, healthcare professionals, people with endometriosis and their support networks, employers, the public, and the media. 

We are also part of the Women's Health Cross Party Group and the Endometriosis Task and Finish Group, which regularly meet to discuss endometriosis care, and what improvements can be made by the Welsh Government.

Information about endometriosis in Wales

  • It takes on average 9 years to diagnose endometriosis in Wales.
  • Wales has only one endometriosis specialist centre, in Cardiff, which often results in long waiting times and those in certain geographical areas facing challenges in being referred to services outside of Wales. 
  • Prior to Covid-19, 32% of patients in Wales were waiting more than 10 months for surgery. This is expected to be much higher following the outbreak of COVID-19
  • In 2018, the Welsh Government established an Endometriosis Task and Finish Group, which investigated the challenges faced by those with endometriosis in Wales. You can read the report produced by Group here

Menstrual wellbeing education in Wales

Since launching a petition in 2019, we have campaigned for the introduction of menstrual wellbeing educatin in schools across Wales.There have been numerous debates and motions brought forward by Assembly Members, and thanks to your efforts, the Minister has committed to menstrual wellbeing education being included within the Relationships and Sex Education component of the Curriculum. We are currently awaiting further detail of how this will be implemented. It is absolutely vital that this is implemented as a mandatory part of the new Curriuclum. Without committing to mandatory menstrual wellbeing education in schools, the next generation of young people in Wales will continue to suffer from menstrual health conditions in silence, without the knowledge or the confidence to seek help if something isn’t right. It will also mean that taboos around menstruation will continue.

Read more about the campaign via BBC News and Wales online

Our menstrual wellbeing campaign has been led by Endometriosis UK and the Fair Treatment for the Women of Wales - with support from several other organisations including the Royal College of GPs, the Royal College of Obsetricians and Gynaecologists, and Plan International. A huge thank you to all the organisations who have pledged their support.

Get support and further information