Campaigning in Scotland

Endometriosis UK campaigns in Scotland by working closely with politicians in the Scottish Government, local government authorities, healthcare practictioners, employers, and other key stakeholders to work to ensure everyone has access to the right support at the right time.

We also have support groups in Aberdeen, Dundee, Fife, the Scottish Borders, Caithness and Sutherland, Edinburgh and Glasgow who provide support and drive positive change for those with endometriosis in Scotland. Find out more about our support groups here

Campaign with us

  1. Write to your MP to call on them to reduce diagnosis time
  2. Sign our petition calling for compulsary menstrual wellbeing education in Scotland
  3. Share your story
  4. Ask your employer to become an Endometriosis Friendly Employer
  5. Distribute our leaflets

Our key asks of the Scottish Government

  1. Faster diagnosis - Reducing diagnosis time for endometriosis to an average of four years by 2025 and under one year by 2030. It currently takes on average a shocking 8.5 years to diagnose endometriosis in Scotland. 
  2. Ensure a baseline in endometriosis care - Ensuring everyone with endometriosis in Scotland gets access to care and support in line with NICE guidance
  3. Menstrual wellbeing education - Mandatory age-appropriate menstrual well-being education in all Scottish primary and secondary schools

The Government's work so far

In Scotland, three endometriosis specialist centres exist and were planned to provide specialist endometriosis coverage for the whole of Scotland. However, these are currently being commissioned as local services and for local capacity, and it has been difficult to get a referral if you live in a different health board area. For some, this can mean no access to specialist treatment even if suffering from deep endometriosis. The Scottish Governments 2019 – 2020 Programme for Government Women’s Health Plan, work being led by the Chief Medical Officer’s Directorate of the Scottish Government, is currently considering the funding of the three specialist endometriosis centres in Scotland to provide a national service, along with reducing diagnosis time, improved care pathways, and improving menstrual health and endometriosis care throughout Scotland. Endometriosis has specifically been included in one of the 5 sub groups of the Women’s Health Group, the Menopause and Menstrual Health including Endometriosis Sub Group.