Today marks a year since we launched our nurse led support service at Endometriosis UK - a step change in how we deliver information and support to the endometriosis community.
The support and take up for the service has been huge - we always knew this service was needed, but we are reminded of that every day through the calls and emails we receive.
In the last year, we have taken over 1000 calls, responded to 500 emails, and responded to a broad range of enquiries on various topics ranging from seeking a diagnosis to recovering from surgery, and symptom management.
As trained endometriosis nurses, we have spent our careers supporting those experiencing often debilitating symptoms, and it's been a privilege to continue our professional training in supporting the community through the Endometriosis UK helpline.
We’re proud of how many people we’ve been able to support in the last year, and look forward to helping even more people during the year ahead.
The calls we receive every day are a stark reminder of the change needed by Governments. Whilst we are here to provide information and support, this relies on Governments making changes so that anyone experiencing symptoms can access the right care at the right time.
We receive calls every day from callers who are often awaiting surgery, may not be having their symptoms taken seriously, or whose symptoms are affecting their day to day life - without government changes, those calling the helpline will continue to face challenges in accessing care.
Every call is confidential, though we do take note of the main themes of calls that come our way, so we can support our campaign colleagues in helping shape the clear need for change, by providing on the ground evidence of how lack of Government action is impacting on the lives of those affected by endometriosis.
What our nurses want you to know about the helpline:
Whether you’ve called the helpline or you’re looking to book an appointment, here are 10 things we want you to know about the helpline:
- No question is a silly question. Please know we will treat any question with respect and dignity. We are here to support you, and you’ll always be listened to.
- If we don’t know how to support you we will be honest with you. This year we have improved our professional knowledge on the menopause and HRT - two topics that we have received a number of calls on.
- Wherever you are in your journey - whether you have a diagnosis and need support, or you’re struggling to have your symptoms taken seriously, we’re here to support you.
- We can support you on a number of things from how to advocate for yourself to what treatment options are available.
- We aren’t here to make decisions for you and we will never advise you on what medication to take, but we are here to support your decisions and provide information to ensure you can make informed decisions about your care.
- We know that some people prefer to email instead of booking a call, when you email, we will always get back to you in 3-5 days, often earlier.
- Calls can be booked via our website, simply choose a time slot that suits you, fill out a few simple details, and we will give you a call at your chosen time.
- We listened when you said you would like to talk in the evenings. We are now committed to opening the line for three evenings per week.
- We will always signpost you to trusted sources of support or information.
- We want to continue to improve the service we offer to you, and welcome your feedback. Please contact us to share your experiences.
If you’d like to find out more or book a call, visit our Nurse Helpline booking page here.
Thank you to all of our fundraisers who continue to raise money to help us maintain this vital service. If you'd like to donate, please click here.
