The 1 in 10 women and those assigned female at birth with endometriosis deserve better. Without investment in research, a reduction in diagnosis time, and appropriate NHS pathways, those with endometriosis will continue to face huge barriers in accessing the right care at the right time. This Winter, join Endometriosis UK in calling for change to ensure all those with endometriosis get on the right path to care.
Endometriosis UK regularly hears from those with endometriosis who are struggling with debilitating symptoms and can’t get the care and treatment they need, including surgery, due to long waiting times, and not being on the right pathway to care. Others are struggling to get a diagnosis, without which they can’t access the care they need. It takes a shocking 8 years 10 months on average to get a diagnosis of endometriosis in the UK.
We want everyone to have access to the right path to care. That’s why Endometriosis UK is calling for:
- Access to the right care pathways for all those with endometriosis, including pathways for care for those with endometriosis outside the pelvis, such as thoracic endometriosis.
- Pathways to ensure all those with, or suspected, endometriosis are always seen in hospital settings by a gynaecologist with specialist training and experience in endometriosis.
- To ensure pathways and support for all aspects of endometriosis.
Thanks to the efforts of Endometriosis UK’s supporters, endometriosis has moved further and further up the media and political agenda. Whilst there is still so much work to do to increase awareness and improve care, thanks to you, we’ve come a long way. Endometriosis is often spoken about in parliaments and the media – and we’re finally starting to see much needed change for the 1.5 million with endometriosis in the UK.
We have lobbied governments for a number of key changes including; the introduction of menstrual wellbeing in the school curriculum, ensuring that all young people recognise what a ‘normal' period is and how to seek help, campaigning for endometriosis to play a key part in policy across all 4 nations including through Women’s Health Strategies and Plans, and campaigning for the National Institute for Health and Care Excellence (NICE) to partially updated their guideline on endometriosis diagnosis and management, this led to key changes that we hope, if properly implemented, will drive down diagnosis times.
With your support, we can come together to drive real change for the endometriosis community and ensure everyone gets on the right path to care. Join us this Winter
