Bedfordshire Support Group
About this group
Our support group is a place where we can find information, support and understanding with women in similar situations. Mostly they will be relaxed, informal groups and where possible we will have speakers. I also hope to promote fundraising and awareness within the local community.
It’s so very important to know that you are not alone and I really look forward to meeting you!
General Session Information
Upcoming Support group sessionsThere are no upcoming sessions at this time. Please check back again.
I was finally diagnosed in Nov 2016 with stage 4 after a routine MRI scan. Unfortunately the endometriosis was so severe I needed an urgent procedure to save my kidneys just 2 weeks later. In 2017 I had two major operations to remove as much endometriosis as possible and also had an ileostomy bag for 6 months whilst parts of my bowel recovered. Unfortunately in April 2018 I lost one of my kidneys because it was too damaged from the endometriosis and also had successful IVF treatment later that year. I am determined to do as much as possible to raise awareness of this condition and provide support to other women who are suffering. So with that in mind I became a support group co-leader in September 2018.
I was diagnosed with endometriosis in September 2007, sadly, following a rather long diagnosis period. I had never heard of endometriosis and felt there was no one to turn to about my pain and other symptoms I was experiencing. I found it really difficult to talk about it until I met with others who shared their own experiences and there and then I knew I was part of a group that understood and could support each other.