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Support Groups

Bedfordshire Support Group

About this group

Our support group is a place where we can find information, support and understanding with women in similar situations. Mostly they will be relaxed, informal groups and where possible we will have speakers. I also hope to promote fundraising and awareness within the local community.
It’s so very important to know that you are not alone and I really look forward to meeting you!

General Session Information

Upcoming Support Group Sessions

  • -
    General support meeting
    Place: Starbucks, Gipsy Lane, Luton, LU1 3JH
    Topic: General support

Meet the Support Group Leader(s)

Picture of support group leader Cat

Cat

I was finally diagnosed in Nov 2016 with stage 4 after a routine MRI scan. Unfortunately the endometriosis was so severe I needed an urgent procedure to save my kidneys just 2 weeks later. In 2017 I had two major operations to remove as much endometriosis as possible and also had an ileostomy bag for 6 months whilst parts of my bowel recovered. Unfortunately in April 2018 I lost one of my kidneys because it was too damaged from the endometriosis and also had successful IVF treatment later that year. I am determined to do as much as possible to raise awareness of this condition and provide support to other women who are suffering. So with that in mind I became a support group co-leader in September 2018. 

Picture of support group leader Deborah

Deborah

I was diagnosed with endometriosis in September 2007, sadly, following a rather long diagnosis period. I had never heard of endometriosis and felt there was no one to turn to about my pain and other symptoms I was experiencing. I found it  really difficult to talk about it until I met with others who shared their own experiences and  there and then I knew I was part of a group that understood and could support each other.

Connect with this group

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Looking for medical advice?

Please be aware that our support service are unable to provide medical advice and can only talk about endometriosis based on their own experience. If you need medical advice, please contact your GP or endometriosis specialist.