Nickie

I  was diagnosed in 2014, I  have stage 4 endometriosis with bowel and bladder involvement so  I understand how living with the disease can impact every part of your life.  I started volunteering with Endometriosis UK in 2021 because I wanted  to provide support for those suffering from this disease and I  wanted  to help improve the support available and bring people together so nobody has to suffer alone or in silence. 

I look forward to meeting you virtually and hopefully in person soon 
Nickie :) 

Rhea

I was diagnosed with stage 4 severe endometriosis in 2011 after 7 years of misdiagnosis in a London hospital.  Both my bowel surgeon and gynae surgeon performed what they called pioneering surgery on a woman of my age. I lost 10 inches of bowel, my left fallopian tube and had a lot of work on my pelvis to name but a few things. The recovery was a struggle but I got through it. Endometriosis still throws obstacles at me but I am finding ways to get around it and will continue to do so. My experience of the disease prompted me to try and help other woman and show them that I am living proof you can get through. 

Lorna

Georgina

I was diagnosed with endometriosis at the start of 2018 after having pelvic pain of varying severity for years.  At one point, I thought my sporadic pain was part of a normal hormone cycle however I am glad I persisted with my GP to finally be referred to a specialist.  Lots of self-care, yoga and mindfulness help me manage my pelvic pain.  I joined Endometriosis UK to help share experiences, to ensure no-one feels alone in their diagnosis and to help empower other women in terms of their health and well-being.