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Meet the Support Group Leader(s)
I finally knew I had endometriosis in 2008, following many years since I was a teenager of wrong or inconclusive diagnoses. A combination of surgeries, hormonal treatment and lots of self care helped to stabilise my health. I really enjoy sharing information with other endo women. During our online meetings we learn so much from each other, as well as from the expert guests.
I was diagnosed with stage 4 severe endometriosis in 2011 after 7 years of misdiagnosis in a London hospital. Both my bowel surgeon and gynae surgeon performed what they called pioneering surgery on a woman of my age. I lost 10 inches of bowel, my left fallopian tube and had a lot of work on my pelvis to name but a few things. The recovery was a struggle but I got through it. Endometriosis still throws obstacles at me but I am finding ways to get around it and will continue to do so. My experience of the disease prompted me to try and help other woman and show them that I am living proof you can get through.
I was diagnosed with endometriosis at the start of 2018 after having pelvic pain of varying severity for years. At one point, I thought my sporadic pain was part of a normal hormone cycle however I am glad I persisted with my GP to finally be referred to a specialist. Lots of self-care, yoga and mindfulness help me manage my pelvic pain. I joined Endometriosis UK to help share experiences, to ensure no-one feels alone in their diagnosis and to help empower other women in terms of their health and well-being.
General Session Information:
If you would like to join the next Virtual Support Group meeting, please email firstname.lastname@example.org with your name, email address and phone number.