Online Support Group
About this group
General Session InformationIf you would like to join the next Virtual Support Group meeting, please click on the link in the meeting information to register.
- -Online support group meetingPlace: Online - Please register by clicking the link belowTopic: General support, Online MeetingVirtual Meeting Link: https://www.endometriosis-uk.org/civicrm/event/info?reset=1&id=973
I was diagnosed with stage 4 severe endometriosis in 2011 after 7 years of misdiagnosis in a London hospital. Both my bowel surgeon and gynae surgeon performed what they called pioneering surgery on a woman of my age. I lost 10 inches of bowel, my left fallopian tube and had a lot of work on my pelvis to name but a few things. The recovery was a struggle but I got through it. Endometriosis still throws obstacles at me but I am finding ways to get around it and will continue to do so. My experience of the disease prompted me to try and help other woman and show them that I am living proof you can get through.
I was diagnosed with endometriosis at the start of 2018 after having pelvic pain of varying severity for years. At one point, I thought my sporadic pain was part of a normal hormone cycle however I am glad I persisted with my GP to finally be referred to a specialist. Lots of self-care, yoga and mindfulness help me manage my pelvic pain. I joined Endometriosis UK to help share experiences, to ensure no-one feels alone in their diagnosis and to help empower other women in terms of their health and well-being.