Online Support Group

Upcoming Support Group Sessions

Date and Time Details Place Topic
Wednesday 29th April 2020 8:00pm - 9:00pm General support meeting for Newly Diagnosed Women with Endometriosis Online General support

Meet the Support Group Leader(s)


My Story:

I finally knew I had endometriosis in 2008, following many years since I was a teenager of wrong or inconclusive diagnoses. A combination of surgeries, hormonal treatment and lots of self care helped to stabilise my health. I really enjoy sharing information with other endo women. During our online meetings we learn so much from each other, as well as from the expert guests.


My Story:

I was diagnosed with stage 4 severe endometriosis in 2011 after 7 years of misdiagnosis in a London hospital.  Both my bowel surgeon and gynae surgeon performed what they called pioneering surgery on a woman of my age. I lost 10 inches of bowel, my left fallopian tube and had a lot of work on my pelvis to name but a few things. The recovery was a struggle but I got through it. Endometriosis still throws obstacles at me but I am finding ways to get around it and will continue to do so. My experience of the disease prompted me to try and help other woman and show them that I am living proof you can get through. 


My Story:

I was diagnosed with Endometriosis in 2009 after suffering with symptoms for more than 15 years. I began volunteering in September 2017 when my eldest child started school and I felt I had a little bit of spare time. I help plan and facilitate the Online Group Support calls which offer access to experts and allow fellow sufferers to share experiences and offer support.

General Session Information:

If you would like to join the next Virtual Support Group meeting, please email with your name, email address and phone number.