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Support Groups

Online Support Group

About this group

General Session Information

If you would like to join the next Virtual Support Group meeting, please click on the link in the meeting information to register.

Upcoming Support group sessions

There are no upcoming sessions at this time. Please check back again.

Meet the Support Group Leader(s)

Picture of support group leader Nickie


I  was diagnosed in 2014, I  have stage 4 endometriosis with bowel and bladder involvement so  I understand how living with the disease can impact every part of your life.  I started volunteering with Endometriosis UK in 2021 because I wanted  to provide support for those suffering from this disease and I  wanted  to help improve the support available and bring people together so nobody has to suffer alone or in silence. 

I look forward to meeting you virtually and hopefully in person soon 
Nickie :) 


Picture of support group leader Rhea


I was diagnosed with stage 4 severe endometriosis in 2011 after 7 years of misdiagnosis in a London hospital.  Both my bowel surgeon and gynae surgeon performed what they called pioneering surgery on a woman of my age. I lost 10 inches of bowel, my left fallopian tube and had a lot of work on my pelvis to name but a few things. The recovery was a struggle but I got through it. Endometriosis still throws obstacles at me but I am finding ways to get around it and will continue to do so. My experience of the disease prompted me to try and help other woman and show them that I am living proof you can get through. 

Picture of support group leader Lorna


Picture of support group leader Georgina


I was diagnosed with endometriosis at the start of 2018 after having pelvic pain of varying severity for years.  At one point, I thought my sporadic pain was part of a normal hormone cycle however I am glad I persisted with my GP to finally be referred to a specialist.  Lots of self-care, yoga and mindfulness help me manage my pelvic pain.  I joined Endometriosis UK to help share experiences, to ensure no-one feels alone in their diagnosis and to help empower other women in terms of their health and well-being.

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Looking for medical advice?

Please be aware that our support service are unable to provide medical advice and can only talk about endometriosis based on their own experience. If you need medical advice, please contact your GP or endometriosis specialist.