London Support Group
About this group
General Session Information
- -Online support group meetingPlace: OnlineTopic: Coffee evening
- -Face to face support group with a specialist nurse on hand to offer advice.Place: McNair Centre, Ground floor, Southwark Wing, Guys Hospital, SE1 9RTTopic: General support
- -Online support group meetingPlace: OnlineTopic: General support
I was told I had endometriosis in 2016 and had my first surgery in 2017. I had a relatively easy path to diagnosis as I had cysts which showed up on imaging. I have a family history of endometriosis and really wanted to get involved with the support groups because I know how incredibly difficult diagnosis has been for the majority of women and how lonely endometriosis can be.
I was diagnosed with endometriosis in 2007, although I first presented to a doctor 16 years earlier. After three years of being essentially bedridden with pain, I had a second surgery in 2013 which helped me to manage the disease. I have facilitated other groups for people with various long term chronic health conditions and have found this so rewarding. I wanted to extend this to other women living with endometriosis.
I was diagnosed in 2011, and understand how living with the disease physically and mentally impacts every aspect of your life. I started volunteering for Endometriosis UK in 2015 because I want to help to improve support for sufferers and their loved ones. By bringing people together I hope that no one feels that they have to suffer alone.
I was diagnosed with Endometriosis in January 2014, following a relatively short diagnosis of 6 months. However, my first surgery revealed that I had extensive presence of the disease and I have had another three surgeries since. I found endometriosis very isolating until I found the Endometriosis UK website. I started volunteering at different events and this led me to attend the London group, which has given me great support and allowed me to form some amazing friendships. This inspired me to undertake group leader training so that I can support other women living with endometriosis.