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Meet the Support Group Leader(s)
I was diagnosed in 2011, and understand how living with the disease physically and mentally impacts every aspect of your life. I started volunteering for Endometriosis UK in 2015 because I want to help to improve support for sufferers and their loved ones. By bringing people together I hope that no one feels that they have to suffer alone.
I was diagnosed in 2016, after years of heavy menstrual bleeding, pain, and being dismissed by doctors. I joined the group because I don’t want anybody to stop seeking help when they have been dismissed. I strive to create a safe space to be around people who understand what you are going through.
I was diagnosed with endometriosis in 2007, although I first presented to a doctor 16 years earlier. After three years of being essentially bedridden with pain, I had a second surgery in 2013 which helped me to manage the disease. I have facilitated other groups for people with various long term chronic health conditions and have found this so rewarding. I wanted to extend this to other women living with endometriosis.
I was told I had endometriosis in 2016 and had my first surgery in 2017. I had a relatively easy path to diagnosis as I had cysts which showed up on imaging. I have a family history of endometriosis and really wanted to get involved with the support groups because I know how incredibly difficult diagnosis has been for the majority of women and how lonely endometriosis can be.
Hello! I've recently joined as a Support Group Leader for UCLH. I lived with symptoms for 14 years before diagnosis at 30. I have endo in my bladder, along my bowels and pelvis. I now have a sacral nerve stimulator pacemaker in my back to help me wee, it's been a lifesaver!
I live in Catford, South-East London with my partner and dog, Nala. Pizza and coffee are my best friends.