London Support Group

Upcoming Support Group Sessions

Date and Time Details Place Topic
Tuesday 06th October 2020 6:00pm - 8:00pm 'Endo and the Bladder' with guest speaker Vimo Arumuham, Consultant Urologist Guest speaker, Online Meeting

Meet the Support Group Leader(s)


My Story:

I was diagnosed in 2011, and understand how living with the disease physically and mentally impacts every aspect of your life. I started volunteering for Endometriosis UK in 2015 because I want to help to improve support for sufferers and their loved ones. By bringing people together I hope that no one feels that they have to suffer alone.


My Story:

I was diagnosed in 2016, after years of heavy menstrual bleeding, pain, and being dismissed by doctors. I joined the group because I don’t want anybody to stop seeking help when they have been dismissed. I strive to create a safe space to be around people who understand what you are going through. 


My Story:

I was diagnosed in 1999 at the age of 22 and have almost 20 years experience in understanding and living with this condition.  Like many women, my journey was not straightforward and has involved multiple surgeries, various hormone treatments and has impacted my fertility. 

I know what a lonely and daunting experience it can be and decided to join the group so that I can help support other women.


My Story:

I was diagnosed with endometriosis in 2007, although I first presented to a doctor 16 years earlier. After three years of being essentially bedridden with pain, I had a second surgery in 2013 which helped me to manage the disease. I have facilitated other groups for people with various long term chronic health conditions and have found this so rewarding. I wanted to extend this to other women living with endometriosis.


My Story:

I was told I had endometriosis in 2016 and had my first surgery in 2017. I had a relatively easy path to diagnosis as I had cysts which showed up on imaging. I have a family history of endometriosis and really wanted to get involved with the support groups because I know how incredibly difficult diagnosis has been for the majority of women and how lonely endometriosis can be.


My Story:

Following 12 years of symptoms, I was diagnosed with Endometriosis in September 2018. I chose to get involved with the UCLH group as I know how important it is for people with the condition to get information and support, and the opportunity to chat to others who understand.


My Story:

Hello! I've recently joined as a Support Group Leader for UCLH. I lived with symptoms for 14 years before diagnosis at 30. I have endo in my bladder, along my bowels and pelvis. I now have a sacral nerve stimulator pacemaker in my back to help me wee, it's been a lifesaver! 

I live in Catford, South-East London with my partner and dog, Nala. Pizza and coffee are my best friends.

Looking forward to getting to know you x