Preston Support Group | Endometriosis UK

Preston Support Group

Upcoming Support Group Sessions

  • Saturday, 9th July 2022, 10:30am - 12:00am
    A gentle well being walk where we can catch up and get some fresh air. Plenty of opportunity to get to know each other further
    Place: Avenham Park
    Topic: Wellbeing Walk
  • Thursday, 8th September 2022, 7:00pm - 10:00pm
    Social evening - drinks, chat and friendship
    Place: The Black Bull - 315 GARSTANG ROAD, PRESTON, PR2 9UP
    Topic: Social
  • Wednesday, 14th September 2022, 7:00pm - 8:30pm
    This is a general support meeting
    Place: Online Meeting
    Topic: General support, Online Meeting
  • Saturday, 8th October 2022, 10:00am - 12:00am
    This is a general support meeting and get to know each other session
    Place: The Black Bull - 315 GARSTANG ROAD, PRESTON, PR2 9UP
    Topic: General support
  • Wednesday, 9th November 2022, 7:00pm - 8:30pm
    This is a general support meeting
    Place: Online Meeting
    Topic: General support, Online Meeting

Meet the Support Group Leader(s)

Kath

I was diagnosed with endometriosis in 2010 following a painful 8 years of misdiagnosis and confusion. My painful attacks only began after I had naturally conceived twice, and I am the proud mum to two boys who are now in their late teens/early twenties. Prior to their birth, my periods were what I considered to be normal. As a young woman they were very light and wonderfully short but, during my twenties they became more debilitating and heavier. Big problems started after my second boy was born, the early years of having my children were speckled with acute, prolonged attacks of agonising pain that did not seem to have any rhythm, rhyme or reason. It was an incredibly tough period for us as a young family as 6 or 7 times each year I went from being perfectly well to being incredibly ill in hospital. The attacks were something I dreaded, they would start with almost like a switch of a button of pain, located surprisingly, somewhere deep under my ribcage. Looking back, the location of my pain so high in my abdomen, probably didn't help the medical teams in A&E or on the surgical wards, nor did my answer "yes" to the question "are your periods normal?" so unfortunately, doctors continued to draw a blank after endless investigations. Thankfully, one time I was admitted to hospital and the only bed was in Gynae/Maternity. After a couple of days, they found a big cyst in action on my right ovary, and that led them to finally, after 8 years, think my problem might have be a gynae one. I'm glad I said I'd have a laparoscopy as I then got my eventual diagnosis of endometriosis, affecting my bowel and ovaries. I never thought endometriosis could cause such pain, disruption and destruction to anyone's body - I thought endometriosis was 'just' heavy periods. This was 2010 and I was a grown woman and yet I knew so little about a condition that had been disrupting my life for at least 10 years if not more!

Treatment for me was the immediate prescription of Prostap injections and HRT to see if there was any improvement to my life, which culminated in a full hysterectomy in 2011. This has had its own issues which have taken some years to adapt to, but I am pleased with the choice and I am free from pain. The challenges of diagnosis and my experience of living with the disease, knowing the physical, emotional and social impact it has, have motivated me to become more involved in the endometriosis community by becoming Preston Support Group Leader. I hope to offer emotional support, hope and reassurance to other women with a diagnosis during their endometriosis journey.

Kia

Emily

I was officially diagnosed with Endometriosis in January 2020 following a 2nd laparoscopy with an Endometriosis Specialist. My inital laparscopy in 2012 had found 'nothing'. I had worsening symptoms since I was 13 and was frequently in and out of hospital with unexplained symptoms growing up. I thought I was weak for not being able to cope with it all. I was told heavy bleeding and severe period pain (even withdrawal bleeds on the pill) were normal and because others in my family were the same (ironically some were undiagnosed with endo at this point) I assumed it was normal. I was also told that bleeding for 11 months was normal and in 2019 everything snowballed and led me to becoming diagnosed, my symptoms and experiences validated and me being felt like I was listened too. I also have polycystic ovary syndrome (PCOS), pelvic floor dysfunction and endometriosis associated chornic pelvic pain.

Finding support and others who understood what I was feeling, thinking, worrying about helped lift a huge weight off my shoulders. It has made the experience a little less scary and less lonely. Hearing others experiences has helped me try things that I may not have considered before to try and alleviate my symptoms.

About the support group:

Our meetings are an informal place to meet others in your position, to know you are not alone. Here, in a friendly, relaxed space you can share your experiences, gain information, increase your knowledge and find comfort in others. You can also feel great knowing that you are helping others. Some sessions will have guest speakers on a range of subjects and the general meetings are a time to socialise and share your experiences. 
I look forward to meeting you! 
Please join the Preston  Endometriosis UK support group by firstly registering using your email address. Then please drop an email to Kath at  PrestonGroup@endometriosis-uk.org and she will send further information about the group to you,

General Session Information:

Our meeting format alternates each month - we hold in-person meetings at the Black Bull in Fulwood one month then an online meeting the following month. Please contact the group via email for more information or just come along - you will be made very welcome!

Our general sessions offer group members a safe, friendly and confidential place to find and offer emotional support while making new friends and learning about life with endometriosis.

Get in touch with Preston Support Group

prestongroup@endometriosis-uk.org

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