Preston Support Group

Upcoming Support Group Sessions

There are no upcoming sessions at this time. Please check back again.

Meet the Support Group Leader(s)

Kath

My Story:

I was diagnosed with endometriosis in 2010 following a painful 8 years of misdiagnosis and confusion. My painful attacks only began after I had naturally conceived twice, and I am the proud mum to two boys who are now in their late teens/early twenties. Prior to their birth, my periods were what I considered to be normal. As a young woman they were very light and wonderfully short but, during my twenties they became more debilitating and heavier. Big problems started after my second boy was born, the early years of having my children were speckled with acute, prolonged attacks of agonising pain that did not seem to have any rhythm, rhyme or reason. It was an incredibly tough period for us as a young family as 6 or 7 times each year I went from being perfectly well to being incredibly ill in hospital. The attacks were something I dreaded, they would start with almost like a switch of a button of pain, located surprisingly, somewhere deep under my ribcage. Looking back, the location of my pain so high in my abdomen, probably didn't help the medical teams in A&E or on the surgical wards, nor did my answer "yes" to the question "are your periods normal?" so unfortunately, doctors continued to draw a blank after endless investigations. Thankfully, one time I was admitted to hospital and the only bed was in Gynae/Maternity. After a couple of days, they found a big cyst in action on my right ovary, and that led them to finally, after 8 years, think my problem might have be a gynae one. I'm glad I said I'd have a laparoscopy as I then got my eventual diagnosis of endometriosis, affecting my bowel and ovaries. I never thought endometriosis could cause such pain, disruption and destruction to anyone's body - I thought endometriosis was 'just' heavy periods. This was 2010 and I was a grown woman and yet I knew so little about a condition that had been disrupting my life for at least 10 years if not more!

Treatment for me was the immediate prescription of Prostap injections and HRT to see if there was any improvement to my life, which culminated in a full hysterectomy in 2011. This has had its own issues which have taken some years to adapt to, but I am pleased with the choice and I am free from pain. The challenges of diagnosis and my experience of living with the disease, knowing the physical, emotional and social impact it has, have motivated me to become more involved in the endometriosis community by becoming Preston Support Group Leader. I hope to offer emotional support, hope and reassurance to other women with a diagnosis during their endometriosis journey.

Kia

About the support group:
 
Our meetings are an informal place to meet others in your position, to know you are not alone. Here, in a friendly, relaxed space you can share your experiences, gain information, increase your knowledge and find comfort in others. You can also feel great knowing that you are helping others. Some sessions will have guest speakers on a range of subjects and the general meetings are a time to socialise and share your experiences. The meetings will take place on the second Wednesday of each month.
I look forward to meeting you! 
Please join the Preston  Endometriosis UK support group by registering your email address for more information about the group via email. 
General Session Information:

Our meeting room is in the Gynae Outpatients department in the Sharoe Green Unit at Royal Preston Hospital. Please use Car Park G. The usual hospital car parking charges apply - £3 per visit - so it's definitely worth bringing some pound coins.
Tea, coffee and cold drinks are available from the vending machine and we will work towards a kitty for our own supplies as the group becomes more established.

How to find us by car
From M6 motorway, exit junction 32.
Turn left off slip road onto A6 Garstang Road heading towards Preston, at the second set of traffic lights turn left into Sharoe Green Lane. Pass the main entrance of the hospital (on your right) and continue past Booths Supermarket (on your left) and at the second mini roundabout turn right in the hospital grounds, continue on this road to the second car park (G). The Sharoe Green unit is on the right.

From Preston Town Centre
Follow the A6 signposted Garstang and Lancaster; turn right at traffic lights signposted to hospital into Sharoe Green Lane. Pass the main entrance of the hospital (on your right) and continue past Booths Supermarket (on your left) and at the second mini roundabout turn right in the hospital grounds, continue on this road to the second car park (G). The Sharoe Green unit is on the right.

Bus Services
Operates from the main bus station
No’s 7, 19, 22, 23 and 123 all go to the hospital

Our general sessions offer group members a safe, friendly and confidential place to find and offer emotional support while making new friends and learning about life with endometriosis. There will be a brief introduction and welcome at each session, and there will always be a very welcome tea break around 7.45pm.