Manchester Support Group

About this group

The support group provides a safe, supportive and friendly environment for sharing your experiences. It offers the opportunity to be listened to and understood, and know that you are not alone. There is a mixture of informal meetings and talks from guest speakers who offer additional information on topics that are of interest to the group.

We aim to be led by what you need so let us know if you have any ideas or suggestions and we will try to accomodate these.

We have established a rolling programme of Wellbeing Sessions as part of looking after ourselves whilst living with endometriosis. These popular sessions include yoga, walking and creative activities. These are in addition to the regular monthly support meetings. All the sessions are tailored to enable everyone to participate, and are often free, or require a small contribution if we have a specialist practitioner facilitating the session. Everyone is welcome to join us.

The group hopes to promote greater awareness of endometriosis and do some fundraising. If this is something you would like to get involved in let us know.

Whether you are recently diagnosed or have lived with the condition for years you are very welcome to come along for a cuppa!

General Session Information

Support Group sessions are usually held monthly. The main venue is at: 2nd Floor, Parkway 3, Parkway Business Centre, Princess Rd, Manchester M14 7LU. This is a few miles south of the city centre. There is free car parking at the front of the building and public transport is plentiful. The venue is fully accessible.

We sometimes change venues/days depending on the event, and to enable wider participation across Manchester. Any changes will be posted on the support group sessions page and our Facebook page.

If you have not heard back from the support group since sending your enquiry and are interested in attending a session please just come along!

Upcoming Support group sessions

There are no upcoming sessions at this time. Please check back again.

Meet the Support Group Leader(s)

Mirfat

I remember being in Post Op ward and the consultant telling me, I have endometriosis, instead of being in shock or be sad, I smiled, it was a smile of relief that thank God this terrible disease finally has a name, that the pain I had been having for years and the dismissiveness I had been facing for years by a multitude of professionals, finally had a name, that I could go home and tell my family/friends that my pains were not phantom pains neither were my heavy periods ‘normal’.

Endometriosis is a debilitating condition. It does not just cause physical pain but also an emotional and mental one. I have Stage 4 Endometriosis covering my pelvis, ovaries and bowel and although they cut through the adhesions in my surgery, my endo was not removed because of it decreasing my AMH even further or worse, killing all the remaining eggs meaning I could potentially lose the chance of becoming a biological mother. I have been told that I need to choose between managing my pain or having a baby in the future. However the irony of endometriosis is that it can cause miscarriage and also infertility. At times I get upset about the delayed diagnosis and the impact it continues to have on the Quality of life and wondering had I been diagnosed sooner rather than have to advocate for myself for nearly 15 years to be taken seriously and be seen by a specialist, would my life be different? A life of ‘ifs and buts’.

Desperate to find out how I could improve the quality of my life, I started searching online, and that is how I came across Endometriosis UK Support Network. I am finally in a place where I can connect with people who ‘get me’. The support of my wonderful endo sisters-who are true warriors - sharing our stories makes me feel like I am in a place where I belong. That’s why the work of Organisations like Endometriosis UK is SO important for us all. They work, fight and support everyone relentlessly so we can get heard sooner, treatment is more accessible and make sure no one suffers in silence!

I look forward to meeting you all :-)

Gemma

Connect with this group

manchestergroup@endometriosis-uk.org

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Support Groups