Cumbria Support Group
About this group
Endometriosis UK Cumbria Support Group
Since December 2019, we have been reaching and making a difference to people all over Cumbria who are struggling with the effect endometriosis has on their lives by bringing people who have been affected by the disease together so they feel less isolated, heard, believed, and understood.
The friendly, safe, and confidential space we have created ensures that no one is left to suffer in silence on their own.
General Session Information
Monthly socials are currently held in the Carlisle, Kendal and Whitehaven.If you'd prefer to attend a meeting from the comfort of your home, simply request a Teams link when you RSVP.
During the summer months, when meetings are held outdoors (such as for fell walks, picnics, foraging, or lake dips), online participation will not be available.
Upcoming Support group sessions
There are no upcoming sessions at this time. Please check back again.Meet the Support Group Leader(s)
Elaine
Hi! I'm Elaine, I’m based in Windermere and I’m a Health and Wellbeing Coach. At the age of 33 I was diagnosed with Stage 4 (severe) deep infiltrating endometriosis as well as Type 1 adenomyosis. However, I believe signs of the disease had started to appear when I was 13 years old as I had painful and heavy periods and was advised to go on the pill to alleviate these symptoms. Things only got worse over the years and I ended up having major surgery in 2022 at the age of 46. Thankfully, I’ve been living pain and sickness free ever since. I created the Endometriosis UK Cumbria Support Group in December 2019 and since then, I’ve been on a mission to raise awareness of the disease in Cumbria as well as the profile of the group so that no one is left to suffer in silence on their own the way I did for many years. Current members are based in Barrow, Bassenthwaite, Carlisle, Coniston, Crosthwaite, Kendal, Kirby Lonsdale, Orton, Penrith and Windermere. If you’re looking for a place where you can express yourself freely amongst a friendly group of peers and in a relaxed environment, we would love to have you join us. I look forward to meeting you soon! Elaine |
Gemma
Hi I'm Gemma :) I joined the group a couple of years ago when I was looking for support and found a group of wonderful friends. I have struggled with Endometriosis since I was 13, and over the years have had 6 operations to remove it. My last operation in December last year was a full hysterectomy and since then I have been relatively pain free! As this support group gave me so much I wanted to give back and so I am now a co leader :) Im looking forward to meeting more people who would like to be part of the group. |
jacqui
I was diagnosed with endometriosis in my mid twenties following a laparoscopy. I suffered with heavy, sometines very heavy periods along with chronic pelvic pain. Like many, I visited my GP a number of times prior to this diagnosis, only to be told it was normal to have heavy periods and pain. I tried numerous treatments, including the pill and coil, and these only worked for a period of time and then the pain returned. Endometriosis has had a significant negative impact on my life, mentally, emotionally and physically. My mental health was very poor at one stage. I was also unable to have my own children, which has been difficult to come to terms with. I am now reaching age 50 and in the last couple of years I had my remaining ovary removed and I am in surgical menopause. I take HRT and this seems to work well for me. I am now relatively pain free too. I was encouraged to become a volunteer for Endometriosis Uk and I have now held my first support group in Carlisle. I look forward to being able to allow others to have the safe space to be able to share their story and to learn from each other with how to deal with Endometriosis and the related symtoms. |
