Personal stories

Topic

Holly's story

Holly shares her story of the impact of having suspected endometriosis while navigating life at University.

A photo of Holly smiling.

Lydia's Story

Lydia shared her story with us following her diagnosis of endometriosis. She tells us about her experience of getting a diagnosis and the additional barriers faced as someone from LGBTQIA+ communities.

A photo of Lydia

The One Million KG Challenge: Lucy's Story

In today's post, we chat with Lucy, whose Dad is taking on a huge challenge in support of Endometriosis UK. Lucy tells us a little of her story and what it means to her to have her Dad's support.

Lucy and her Dad, Matthew

Gina's Story

"Being diagnosed has helped me understand what my body has been going through and given me peace of mind that it’s not all in my head - I was right in thinking I shouldn't have been feeling like this"

This is Gina's story.

Gina smiling holding sunflowers

Endometriosis at work: Rachel's Story

Rachel signed up her workplace as an Endometriosis Friendly Employer in 2022 to spread awareness and provide insight into the condition

Rachel smiling

Bonnie's Story

"The financial stress is something you can’t comprehend until you are in the thick of it"

This is Bonnie's story.

Bonnie Smiling

Hannah's Story

“I felt incredibly anxious that I wouldn’t be able to have the career I wanted.”
This is Hannah’s Story.

Hannah standing smiling wearing an Endometriosis UK t-shirt.

Helen's Story

In today's post we share London Support Group Leader Helen’s opinion on why Endometriosis is NOT benign.

A photo of Helen smiling with her cat next to some yellow daffodils

Lowri's Story

"Before my diagnosis I was convinced that I was just rubbish at dealing with period pain and that I wasn’t as 'strong' as my friends or family members.
Being finally diagnosed came as a wave of relief – there was actually something wrong and a reason that my pain felt much worse than my friends.”

Treatment & Management
Lowri

Fionnula's Story

“I am so grateful to the endometriosis community, including Endometriosis UK, for guiding me for many years, even when I did not have an ‘official’ diagnosis.”⁠

Fionnula shares her experience of symptoms, diagnosis and finding support within the endometriosis community.⁠

Diagnosis
Treatment & Management
Fionnula

Demi's Story

"I have been welcomed into a beautiful community, the endo community is there for you and I have genuinely gained so many new friendships.” ⁠

Demi shares her experience of diagnosis and finding support and friendship within the endometriosis community.

Diagnosis
Treatment & Management
Demi standing and smiling

Mirfat's Story

"I am finally in a place where I can connect with people who ‘get me’."⁠

Mirfat tells her story of getting diagnosed and finding support within the endometriosis community.⁠

Diagnosis
Mirfat smiling

Miranda's story

Miranda shares her fertility journey including the loss of her first baby and an IVF pregnancy after loss.

Fertility
Miranda Burns

Priya's story

Priya shares her experience of living with endometriosis as an Asian woman and raising awareness to tackle taboos

Treatment & Management
Priya

Surgery recovery: Lowri's story

Lowri is a volunteer for Endometriosis UK, and shares her experience of recovering from surgery

Surgery
Lowri Shepstone

Anita's story: Egg Freezing

Anita's egg freezing journey

Fertility
Anita Jones image