Christianne

I know first-hand what it is like to live with endometriosis, to feel unheard, exhausted and overwhelmed while searching for answers. I experienced debilitating pain from my teenage years and, after ten years of being dismissed and countless medical appointments, I was finally diagnosed with endometriosis.

What followed were years of invasive surgeries which brought little relief and had a significant impact on my quality of life. I then made fundamental, practical and sustainable lifestyle changes, particularly around nutrition and self care, and my symptoms improved dramatically, although further complications eventually led to a hysterectomy.

When a close family member was diagnosed with endometriosis some years later, I was deeply disappointed to see that diagnosis times, understanding and treatment pathways had changed very little. This was a turning point for me and reinforced how vital peer support, shared experience and accessible information are for those living with the condition.

Since 2017, I have co-led the North Essex support group for Endometriosis UK, creating a safe, informal and welcoming space where people affected by endometriosis can meet others who truly understand, feel listened to and supported, and realise they are not alone, whatever stage they are at.

Sheree

I was diagnosed with endometriosis, fibroids and PCOs, in December 2013. I did not know what it was or how this would impact on my life both physically and, emotionally. I felt silly that as a woman I had no idea what this chronic incurable illness was and how I was going to manage and move forwards.

I spent lots of time in recovery from my operations, researching and I attended a day with Endometriosis UK in London in 2014. This was inspiring and reassuring, and I realised how much I wanted to spread the word.

I now feel ready to support other woman who may have felt like I did, so they do not have to suffer in silence or go through whit I and many other woman have had to.