Endometriosis UK are sharing this statement as Secretariat of the APPG on Endometriosis.
Press statement from Kirsteen Sullivan MP, Chair of the Endometriosis APPG
The All-Party Parliamentary Group on Endometriosis is launching an Inquiry into Endometriosis and the workplace; the second inquiry the APPG has conducted since 2020.
The inquiry follows the latest data from Endometriosis UK showing it takes on average 9 years and 4 months for diagnosis of endometriosis in the UK, a statistic that hasn’t improved in over a decade.
Kirsteen Sullivan MP, Chair of the APPG on Endometriosis said:
“Endometriosis Action Month has raised so much more to do; 1 in 10 women have endometriosis and they must get the support they need. Around 1 in 6 women with endometriosis end up leaving the workplace, which is completely unacceptable, and could be avoided by giving employers support.
“Unacceptable gynaecology and diagnosis times for endometriosis are affecting women and their ability to remain in the workplace. It is a pivotal time for the Government to listen, accept the case for investment, and champion our calls for change. The APPG is launching an Inquiry into the workplace to bring this issue to the forefront and highlight both best practice and challenges faced in the workplace, and what the Government can do to ensure no one with endometriosis faces unscrupulous practices at work”.
The APPG Inquiry will run an open survey for those with endometriosis from May until July and hold a series of oral evidence hearings. MPs, led by Ms Sullivan, will question and examine evidence from medical institutions, case studies, and women facing delayed diagnosis or treatment.
We want to hear from employers, those with endometriosis whose careers have been affected, occupational health experts, and anyone who has experience to share of endometriosis at work – both best practice, and anyone who has experienced difficulties.

