Share your story

Your stories enable us to highlight the experiences of those impacted by endometriosis.

We can use your stories to inform and support all areas of our work, including awareness raising, fundraising and campaigning.

Your stories are our most powerful tool on our mission towards endometriosis being recognised and understood, and where the disease does not limit people’s lives.

We are so grateful to everyone who chooses to share their story.

Thank you.

Section 1: Contact Details
Do you consent for us to contact you using the email address provided?

We will use your email to contact you about your story, if you consent for us to do so. If you do not consent for us to contact you, we will not be able to share your story.

Uploading a photo is not compulsory but if you would like to share a photo of yourself to be shared alongside your story, please do. We will always contact you before sharing your story and/ or photo publicly.
One file only.
40 MB limit.
Allowed types: jpg jpeg png.

Section 2: Your Story

Thank you for sharing your story with us. Everyone’s experience is important to the work that we do.

Please select the option that best describes your experience with endometriosis

Please tell us your story

Your story is completely unique to you and that is what makes it so valuable.

You might like to consider the following questions to help share your story:

  • When did you first notice symptoms?
  • When did you seek medical attention and how did this go?
  • If you are already diagnosed, how long did this take?
  • What was your diagnosis journey and experience with medical practitioners like?
  • What impact does endometriosis have on your day to day life? Consider education, work, family and relationships, mental health, hobbies and activities etc.
  • How did you hear about Endometriosis UK?
  • Any final thoughts to share with others with endometriosis?

Please note, we can not share information that references specific medical professionals or medical establishments by name. 

Section 4: Tell us more about you...

We are passionate about representing everyone affected by endometriosis. These questions are optional, but they help us to better understand and represent the experiences of everyone, including those from marginalised communities. Please answer them if you feel comfortable doing so.