Announcing new Patient Leader role for Carol Pearson

Friday, February 05, 2016

Carol Pearson will become Endometriosis UK’s first Patient Leader, an exciting new volunteer role for the organisation.  Carol has stepped down from Endometriosis UK's Board of Trustees where she was a Trustee from 2008 - 2010 and 2011 – 2015, and served as Treasurer.

Carol has worked with the Endometriosis UK team to develop a new volunteer Patient Leader role for the organisation, ensuring that the voice of those with lived experience of endometriosis continues to shape our work.

Chair Angela Style said " Carol has been a huge inspiration to so many within the endometriosis community.  She has worked tirelessly for many years to provide compassionate support to women with endometriosis and to raise awareness of the impact of endometriosis on women's lives. Her TedXBrighton talk about her own experience of endometriosis has been watched over 12,000 times. Carol has also dedicated herself to improving the services received by women with endometriosis.  We are absolutely delighted that she will be continuing her work with Endometriosis UK in this new volunteer Patient Leader role."


Carol said "It has been a real honour and a privilege to serve as trustee of Endometriosis UK. I am absolutely delighted to be continuing that work as your Patient Leader. There is still so much for us to achieve - and no room at all for complacency. It is going to take all of us to work together to raise awareness of endometriosis so that women in future have access to the best possible treatment, support and information. I would like to thank the Board, the staff and volunteers for their incredible dedication and the work they do behind the scenes - this is no easy task and they bring an exceptional level of skill, commitment and passion to their roles. Many of us have faced a really tough journey - Endometriosis UK has brought some light to that darkness but there is still much work to be done."

Carol will also continue to sit on the NICE Endometriosis Guideline Committee as a representative of local commissioners. Carol is the Audit Chair for Crawley Clinical Commissioning Group.

Amanda Collier, a trustee since 2014 and an accountant at PWC, has been elected as Endometriosis UK's new Treasurer.