Julia

I was diagnosed with stage 4 endometriosis in 2024, but have suffered for many years with painful periods. Looking back, I recognise what I now know to be symptoms of endometriosis going back on and off for 20 years (at times these were masked by taking hormonal contraceptives). At its worst I would experience sickness, dizzy spells, bowel issues, bloating and severe fatigue. I've also experienced pain so intense that I’ve considered calling an ambulance. But you can’t call an ambulance for ‘just’ a period, can you?!

I hadn’t heard of endometriosis before looking into fertility related issues. Thanks to information I found on the Endometriosis UK website, I went to a GP appointment armed with knowledge and a list of symptoms to request a referral for investigations. I’m so thankful that the GP took me seriously and put the wheels in motion. Previous trips to different GPs weren’t as helpful, being given pain relief and receiving an inaccurate diagnosis of IBS.

I joined Endometriosis UK as a group leader to help provide an opportunity for support and sense of community for those with a diagnosis, those who think they may have the condition and friends and family looking for information and ways to help their loved ones. Talking and sharing experiences can be so beneficial, learning from each other and feeling less alone. I’m keen to talk about my experience as much as possible to raise awareness in the hope that others may be able to receive an earlier diagnosis.