The James Lind Alliance Priority Setting Partnership for Endometriosis wants to identify and prioritise uncertainties, or 'unanswered research questions', about endometriosis. This will help to ensure that those who fund health research are aware of what really matters to both women with endometriosis and health care providers.
Following an initial survey in March 2016 - and many thanks to the 2000 people who responded - analysis has narrowed the 4,800 questions suggested down to 80. We need your help to select the top 10 - not an easy job.
We encourage everyone to take part in an anonymous online survey to pick the top 10 unanswered research questions. We would like to hear from you if you are a woman who has/has had endometriosis, a carer/partner/child/friend/parent/employer of a woman who has endometriosis, or a medical doctor, nurse or professional allied to medicine with clinical experience of caring for women with endometriosis. TO ACCESS THE SURVEY PLEASE CLICK HERE. This survey will remain live until 20 March 2017.
The results will shape the future research agenda around endometriosis, and be used as a source of evidence by researchers applying for funding.