We know fertility can be an important, and sometimes difficult topic for many in our community. In this post, we’re sharing information on the relationship between endometriosis and fertility, signposting to further information, and highlighting the changes we’re calling for those who need fertility care.
What is the link between endometriosis and fertility?
Endometriosis does not necessarily cause infertility but there is an association with fertility problems, although the cause is not fully established.
Due to a lack of research, the links between fertility and endometriosis are not fully known. In some cases, it may be because the disease distorts the reproductive organs.
To learn more about what we do know, and for information on how to access support, please visit our endometriosis, fertility and pregnancy information.
Improving fertility care for those with endometriosis
It is vital that anyone with endometriosis who is concerned about their fertility has access to the information and support they need. We believe that if an individual’s endometriosis, or the treatment they are receiving, could impact on their fertility, they should have access to NHS treatment for fertility support and preservation.
Endometriosis UK’s key asks of Governments in relation to fertility are:
- Doctors should always ask about concerns and desires around fertility
- Anyone undergoing treatment for endometriosis that may impact on their fertility should be informed of this and offered access to fertility preservation
- In line with NICE guidance on fertility problems (CG156 https://www.nice.org.uk/guidance/cg156) where there is a known clinical cause of infertility (which includes endometriosis), earlier referral to a specialist consultation should be offered
- Ensure the newly updated NICE Guideline on Endometriosis and Fertility pathways is properly implemented, and review progress.
- Those who do not want children should still be afforded the same level of care and access to treatment for their endometriosis and symptoms
Endometriosis UK is also delivering the Fertility in Wales project, funded by The National Lottery Community Fund Wales. The project aims to improve fertility education, awareness and support for people across Wales.
It focuses on four key areas:
- Education: improving understanding of fertility health, fertility preservation and signs and symptoms of poor menstrual health among young people, colleges and universities.
- Healthcare professionals: developing resources to support people waiting to access fertility services.
- Employers: raising awareness of fertility issues in the workplace and encouraging inclusive policies and practices.
- Peer support: providing opportunities for those affected by fertility challenges to connect with others and access support.
Find out more about the Fertility in Wales project.
For further support and information, Fertility Action are a leading UK charity providing public education, information, support groups for those navigating their fertility journey.
This Fertility Awareness Week and beyond, we’ll be sharing information and support for our community, while continuing to campaign for everyone with endometriosis to have access to the information, care and treatment they need.