Personal stories

Topic

Lily's Story

"I've never felt relief and validation to the extent I did on the day of my surgery because I finally had answers to my pain and knew I wasn't imagining it all these years."

This is Lily’s Story.

A photo of Lily and her Mum

Anahita's Story

"I’ve missed so much time at school, university, work, social events because of my symptoms. It’s frustrating being that person that’s always unwell."

This is Anahita's story.

Anahita

Ria's Story

"Talking about endometriosis is so important and I tell all my friends to feel free to ask questions as I know how hard the journey can be."
This is Ria's story.

Ria

Jessica's Story

"Over my whole journey it has felt like there has been a lack of willingness to help me, that the pain is in my head, I just needed to wait."

This is Jessica's story.

Jessica

Josie's Story

"With Pride Month upon us, I wanted to share my story and how my sexuality has impacted my endometriosis journey."
This is Josie's story.

Josie's Story

Mollie's Story

"I'm so exhausted and I genuinely feel bad for having to cancel on friends. It's easy for them to think I just can't be bothered, but actually I'm in agony."
This is Mollie's Story.

Mollie

Daniela's Story

"Your struggles are valid, and you're not alone. Keep advocating for yourself, use a symptom diary and seek second opinions if needed. You deserve understanding and relief."

This is Daniela's Story

Daniela

Nicole's Story

"I’ve been fighting for so long and never had the right answers as I was told I was ‘too young’ to have anything serious."

Nicole

Saffiyah's Story

Content warning: brief mention of suicidal thoughts and feelings. Reader discretion is advised.

Saffiyah

Rebecca's Story

Rebecca tells the story of her journey to diagnosis, mixed experiences with medical professionals and the impact of endometriosis on day to day life.

Rebecca

Michelle's Story

This Endometriosis Action Month, Michelle shares her experience of getting diagnosed and the impact of endometriosis on her life.

Michelle

Tannagh's Story

“All I can say is keep the right people in your corner. My friends, family and colleagues are who get me through.”⁠

A photograph of Tannagh smiling, standing next to a rose bush and holding a puppy

Daniel's Story

“Be kind to yourself and remember that this is a long term very unpredictable condition that both of you will be coming to terms with.”⁠

Daniel and Rebecca

Maeve's Story

“I am so proud of myself for never giving up because knowledge is power and getting a diagnosis has helped me to take back some of the control this condition has had over me.”

This is Maeve’s story.

A photograph of Maeve, sitting in a rowing boat and smiling.

Why I Volunteer: Michelle's Story

Forth Valley Support Group Leader Michelle shares why she became a volunteer, what the group means to her, and the support it provides to local people with endometriosis. ⁠

Michelle smiling wearing a yellow Endometriosis UK t-shirt

Jakia's Story

"I feel more dialogue and transparency is required to be open about these issues, so that we are prepared from a young age."

Jakia shares her story.

Jakia Smiling