Personal stories
Living and Working with Endometriosis: Cara's Story
“On one hand, I feel extremely fortunate for the supportive relationships I have with my colleagues. Open communication is a norm, and I am surrounded by understanding individuals.
On the other hand, I believe this should be the bare minimum for everyone in the workplace.”
Orla's Story
"While I am private in many aspects of my life, I am committed to sharing my Endometriosis journey to help others feel less alone."
Johanne's Story
"I attended a volunteer training day in Edinburgh November 2023 and I’m so glad I did. It was extremely empowering to be in a room of others going through the same condition as myself. I didn't feel alone, I felt emotional, I felt supported, and I definitely felt I had found my tribe."
Caitlin's Story
"I describe my daily life as Russian roulette—it’s completely unpredictable. Some days, I can push through and get things done. Other days, the pain is so unbearable that even getting out of bed feels impossible. I never know how I’m going to feel, which makes planning anything incredibly difficult."
Beth's Story
"I first came across Endometriosis UK when desperately searching for answers and feel like they have played a huge part in me being able to finally get a diagnosis. The resources, help and information they have available, have been invaluable"
Laura's Story
“I've had to explain what endometriosis is and how it affected me to so many people. This has included friends, family and colleagues. Most people think it's just a bad period.”
Endometriosis as a Professional Athlete
Charlotte Henshaw MBE, Paracanoe Paralympic Champion and Endometriosis UK ambassador shares her experience of endometriosis and navigating the disease as a professional athlete.
Deepti's Story
"Some days, I have zero mobility. Other days, I’m dancing at a party. I never know what I’ll wake up to. This uncertainty has affected every aspect of my life.
But I refuse to be silent. My journey isn’t just about pain; it’s about resilience, awareness, and demanding better for those who come after me."
Leah's Story
"It can be stressful and alienating when friends and family believe I'm exaggerating the agony or that it's "just bad periods.""
Endometriosis at Work: Rachel's Story
Endometriosis UK is pleased that Bank of Ireland pledged to become an Endometriosis Friendly Employer in 2022. Rachel Hughes shares her story of life, work and endometriosis.
Amber's Story
"When I was finally diagnosed with endometriosis, I felt a mix of relief and frustration—relief that I finally had an explanation for everything I had endured, but frustration at how long it had taken and how much I had suffered in the meantime."
Endometriosis at Work: Kate's Story
"I feel like I am now able to reach my potential"
Kate shares her experience of navigating endometriosis at work and the difference that a supportive workplace can make.
Jenna's Story
"Daily life at times has been a struggle and the diagnosis and timescale for treatment etc has had a massive impact on my mental health."
This is Jenna's Story.
Janell's Story
"I’m on a journey, trying to understand and advocate for my body even when it feels like no-one is listening."
