Cornwall Group

About this group

 

This peer support group is for anyone living with diagnosed or suspected endometriosis plus their carers/parents.

In this group you can share as much or as little as you like, meet people experiencing similar lives as you, and ask questions.

Peer support groups are a fantastic way of helping you feel a little less lonely in your journey. There is no formal agenda and you are welcome to arrive at any time from 7pm.

General Session Information

Please feel free to ask me any questions that may help you feel comfortable in attending. Well behaved dogs are welcome!


Exact location: https://www.facebook.com/BerriesCommunityCafe



Parking: there is free on street parking available. Please be mindful of parking outside homes.


Cost: free but donations welcome.


Privacy: we will have sole use of the space and there will be no one else there.


The venue is wheelchair accessible with a toilet on site.


Please note I cannot personally offer medical advice and although I am a trained volunteer with Endometriosis UK I am not clinically NHS trained.

Upcoming Support Group Sessions

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    This support group has been set up to help combat the loneliness, overwhelm and limitations that living with suspected or diagnosed endometriosis can bring
    Place: 40 Berries Avenue, Bude, Cornwall EX23 8QE
    Topic: General support, Social

Meet the Support Group Leader(s)

Picture of support group leader Sage

Sage

My name is Sage and I live in North Cornwall. I was diagnosed with deep infiltrating endometriosis via an MRI in October 2024, following almost 21 years of extremely painful periods, what I now know to be pre menstrual dysphoric disorder along with lower back, pelvic and sciatica.
 
This MRI only followed a hospital stay for kidney stones where, during a scan, my ovaries were found to be adhered with multiple large cysts. Luckily, the sonographer suspected Endometriosis and referred me. I'm forever grateful to her.
 
For me, I didn't often bleed heavily, and that's why I was dismissed for so many years. But endo feels and presents different in every single person.
I've seen many nurses and doctors over the years and tried all medications/hormonal treatments. In Jan 2026 I am finally seeing a surgeon, and whilst there's no cure for Endometriosis, for me I am seeking surgery as a management.
 
I joined Endometriosis UK as a volunteer so that hopefully, I can try to help even one person get answers sooner, take back some control and live a full life.
 
I am unable to offer medical advice as I am not a medical professional, just someone coming out the other side of the endo diagnosis journey that wants to help others.
 
Outside of this group, I enjoy chess, knitting, wordsearches and cold water swimming!
Looking forward to meeting you all.
 
In solidarity,
Sage 

Connect with this group

cornwallgroup@endometriosis-uk.org

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Looking for medical advice?

Please be aware that our support service are unable to provide medical advice and can only talk about endometriosis based on their own experience. If you need medical advice, please contact your GP or endometriosis specialist.