North Warwickshire group
About this group
If you are living with endometriosis, suspecting you might have it, or supporting someone who does, please know that you are not alone. This space is created for you—a safe, calm, and understanding environment where you can connect with others who truly understand the physical and emotional impact of this condition.
Our group is run by volunteers who have firsthand experience with endometriosis. We are here to listen, share experiences, and offer mutual support without judgment. Whether you want to talk through your journey, ask questions, or simply sit back and listen, you are incredibly welcome here.
What Our Group Is For ;-
Community & Connection: Meeting others in the North Warwickshire area who understand the realities of living with chronic pain and fatigue.
Shared Experiences: A space to discuss everything from managing symptoms and navigating medical appointments to balancing daily life and mental well-being.
Information & Empowerment: Accessing trustworthy resources to help you feel more confident in managing your health journey.
Helpful Signposting
While our group is a wonderful place for peer support, we want to ensure you have access to professional guidance whenever you need it:
🎗️Endometriosis UK Helpline: If you need a confidential, listening ear outside of our meetings, you can call the national helpline on 0808 808 2227.
🎗️Online Community: You can access the Endometriosis UK online forum 24/7 via HealthUnlocked for peer support at any time of day or night.
🎗️Webinars and Information: Visit the main Endometriosis UK website for evidence-based factsheets, webinars, and materials you can take to your GP appointments.
Please note: While we share personal experiences and coping strategies, our group coordinators are volunteers and cannot provide official medical advice. Always consult with your healthcare team regarding treatments and diagnoses
General Session Information
General support to those struggling with endometriosis and those who suspect they have endometriosis. There is no obligation at all to share your story, it is a safe space where we can discuss the issues surrounding the waiting times for surgery, suggestions on what you do for self-care.
Coffee mornings 11am (The Chai Cafe in Bedworth)
Virtual Meetings 19:00-20:00
Upcoming Support Group Sessions
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Casual meeting, introductionsPlace: RemoteTopic: General support, Online Meeting
Meet the Support Group Leader(s)
Stevie
My EndoStory 🎗️
Hello @everyone, my name is Stevie, 38, married with 3 sons (1 being a 🐈) and I received my diagnosis of
#Endometriosis in 2017, 12yrs in all!
I had always suffered with heavy periods since my early teens, having to skip PE lessons at school, collapsing at home and falling asleep, leaking through my underwear and seeing the blood in the stool and keeling over in pain.
After the birth of my son, my periods got much worse, to the point people were asking me if I was pregnant again when my belly would swell!
I decided then to get some answers on what's happening to me, especially after my sister was diagnosed with both #Endo and #Adenomyosis. After a Laparoscopic in 2017 I got the diagnosis from my surgeon and I cried on the bed, happy tears, because it was no longer in my head!. Being found in the right ovary, pouch of Douglas, 25mm cyst and adhesions.
The flare ups are awful, having episodes of excruciating pain that I've almost collapsed, not being able to walk, joint and muscle pain, Endo belly, low moods, pain in the pelvic area, pain during intercourse....
Fast forward to 2024, the disease has spread to the left ovary slightly fusing with the uterine wall, 25mm cyst on the right ovary. Treatment; Mirena Coil, again 😖...which was inserted in SEPT 23 and still hasn't worked. In fact its made my libido switch off, very low in mood, fatigue 😩 and aches and stiffness.
In 2025 I was advised by my consultant to go on the Pro Strap, putting me into a chemical Menopause, which has helped reduce the pain for a time but now after being on it for 18 months now, it's losing the effect.
I needed a 2nd Laparoscopic as I felt the pain spreading to the left ovary, the same hospital gaslit, telling me I didn't have Endo!!
I had decided to refer myself to Birmingham Women's Hospital after a very unskilled surgeon had done my 2nd Laparoscopic surgery at my local hospital and gaslighting me telling me I did not have Endometriosis! Despite having already been diagnosed back in 2017. I now have an amazing Consultant, Mr Amir Khan, who just gets it, has listened to time and time again and supports me; for example whilst we were discussing my care plan and being under PIFU guidelines, quoting "I don't want to just discharge you simply because you have the coil"....
We're in 2026 now and I am waiting to have a Total Hysterectomy, as of now I am Stage 4 with deep infiltrated endo.
What else is there to know?
I like;-
•Documentaries- crime and war
•Harlan Coben
•Obsessed with Cows
•Cat Mum
•Walks
•Football (Man City supporter)
