Lobby your MP and call for change

Following the launch of the APPG report, we need to gather as much MP support as possible to encourage the Government to make key changes to the way endometriosis care is delivered, and to ensure those with endometriosis have the support they need to manage their condition. The more MPs we gain support from, the louder our voices will be. Thanks for your support!

If you live in Scotland, Wales or Northern Ireland, click here.

Writing to your MP is easy:

  1. Find out who your MP is here by entering your postcode: www.theyworkforyou.com or call the House of Commons Information Office on 020 7219 4272. MPs usually have an office in their constituency (your local area), and in Parliament. You can contact them at either office by telephone, letter or email.
  2. Copy and paste their email address from the above link, and send them the below email. Don’t forget to personalise the email as much as possible and add in your personal experience. Always include your full name and address so they know you are their constituent.
  3. If you receive a reply, we’d love to see a copy. Please email communications@endometriosis-uk.org so we can track support from MPs.

Template email:

Dear [Insert MP Name]

I am one of the 1.5 million with endometriosis in the UK. Despite affecting so many, and being the second most common gynaecological condition in the UK, there is no cure for the condition, we don’t know what causes it, and treatment options are limited.  It also takes on average a shocking 8 years to diagnose, and can have a huge impact on all aspects of our lives, including our education, careers, fertility, and our physical and mental health.

A new report launched in October by the APPG on Endometriosis found that diagnosis time hasn’t improved in over a decade – and it still takes 8 years on average to get a diagnosis. This is having a huge impact on people’s physical and mental health and the Government must take urgent action to bring this down. The report also found that prior to getting a diagnosis, 58% visited their GP more than 10 times, 53% had to visit A&E, and 90% of people would have liked access to psychological support but were not offered any.

 

My own experience of endometriosis has been…Here you can insert a summary of your personal experience, such as how long it took you to get diagnosed, or the impact the condition has had on your life.

The Inquiry into endometriosis has provided a huge opportunity for people like myself with endometriosis to feel heard. But we need your support in making sure the outcomes of the report are heard in Parliament, and that the Government takes action to ensure the next generation of people with endometriosis are given the right support at the right time.

Alongside Endometriosis UK, the UKs largest charity supporting people affected by endometriosis, and the APPG on Endometriosis, I am asking for your support and to write to the Secretary of State for Health and Social Care, The Rt Hon Matt Hancock MP, and call on him to:

  • Make a commitment to reduce average diagnosis times with a target of 4 years of less by 2025, and a year or less by 2030
  • To ensure a baseline for endometriosis diagnosis, treatment and management by implementing the NICE Guideline on Endometriosis Treatment and Management (2017), adopted across the UK, but not implemented.
  • Up to 10% of those with endometriosis will have the disease outside the pelvic cavity, yet the NICE Guideline only provides a care pathway only for endometriosis within the pelvic cavity. The APPG is calling for NICE to ensure that care pathways for all locations of endometriosis are developed and implemented, starting with thoracic endometriosis.
  • Investigation into the barriers faced in accessing care for those from black, Asian and minority ethnic backgrounds and end the ethnicity and gender gaps in medical research.
  • Invest in research to find the cause of endometriosis, better treatment, management and diagnosis options, and one day a cure.
  • A commitment from all 4 nations to include compulsory menstrual wellbeing in the school curriculum so that young people recognise the warning signs of menstrual health conditions and know when to seek help. This is compulsory in schools in England from 2020, but is not UK wide.

Without these changes, people like myself will continue to struggle to get access to the right care at the right time. I hope you will take action on behalf of myself and other constituents and call on the Government to make urgent changes to turn this around.

If you would like to join the APPG on Endometriosis and receive updates on its work, please email the APPG’s Secretariat Faye Farthing from Endometriosis UK on faye@endometriosis-uk.org to be added to the mailing list.

Best wishes,
Your name and address

[You will need to include your address so your MP knows you are their constituent]