What I wish I had been told about living with endometriosis | Endometriosis UK

What I wish I had been told about living with endometriosis

  • Friday, March 09, 2018

‘I wish I had been told about the struggles you experience on a daily basis and how debilitating this chronic illness can actually be’

I was first diagnosed with endometriosis in 2017 after multiple scans and a laparascopy. This was after being misdiagnosed for eight years previously. My life has been turned upside down since my diagnosis, but I’m so happy I finally know what’s wrong with me.

I am currently studying at university. Endometriosis has affected the amount of time I have attended university due to the pain I experience. I found it extremely difficult to be able to attend every lecture and have ended up missing many due to pain. Sometimes the university have been understanding and sometimes they have not. It’s very difficult for people to understand the pain and flare ups that can be caused from endometriosis. This has resulted in them telling me “it’s only period pains, you can cope”. This caused me distress and upset, which doesn’t help as I suffer from depression and anxiety. My partner has helped me through the most difficult times of university. 

Endometriosis affects my ability to complete essays as sitting for long periods of time is very difficult. I often find that I end up doubled over in pain. My social life has definitely been affected by endometriosis. I often have to come home early from a night out. Sometimes I feel as though I’m missing out on general university life and don’t feel normal because I can’t do everything that everyone else can do. 

Although endometriosis has really affected my university life, this has only made me more determined to succeed. I’m in my last year of university and I am predicted to get a first class degree. This is something I didn’t think I’d ever be able to achieve and even though I’ve struggled so much, and experienced pain that has debilitated me at times, I’m more determined than ever to try and achieve my best.

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