I hoped that after my troublesome problems, I would be able to finally gather my health and enjoy my family. Unfortunately, this has not been the case as I began struggling with irregular bleeding, fatigue, and pain during sex. I assumed this could be an infection and went to see my GP who gave me antibiotics. My problems persisted, so I made a tearful visit to my GP asking for help, and was referred to see a gynaecologist. My gyneacologist referred me for a Laparoscopy, the results of which; I received in January 2008.
My Consultation in January was brief, and provided no allowance that I knew nothing about endometriosis; I had never heard of it before in all my long history. I was prescribed hormone treatment, which shuts down the ovaries and creates a fake menopause, and HRT to add the oestrogen back into my body and alleviate my menopausal symtoms. I was given no information other than a leaflet from inside the medicine box, and a review appointment in four month’s time.
I went home worried and upset at the lack of support I had been given, and that there was no attempt made at providing me with help finding further information and advice. I just could not believe that this was the normal situation currently experienced by women diagnosed and receiving treatment.
This has been my motivation for setting up a Local Support Group run through Endometriosis UK. I believe that women should be made aware that there is a support network available with advice and legitimate information, and that there are other women who understand what each other is going through, and are willing to share and support one another during a very emotionally and physically difficult time.
The first group meeting is in June and I look forward very much to providing a place for women to feel at home, with information and discussion about endometriosis, and how to improve well-being, and manage our condition. I have worked very hard these last few months contacting dozens of health practices, Gynae Consultants, Therapists and most importanty, other women like me. I have learned that endometriosis can have an enormous impact on every aspect of one’s life; as a mum, wife, employee, and friend, and that each of these areas cause great anxiety on top of the pain, fatigue and infertility already experienced.
My health unfortunately is still being affected greatly by the endometriosis and I may well have to recieve surgery again. However, I know that I am not alone and by helping others and spreading awareness, I am working towards a positive future.
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