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About us
Endometriosis UK (formerly the National Endometriosis Society) started in 1981 as a self-help group for women with endometriosis. Now, we are a charity committed to providing much-needed support and information for anyone affected by the condition. We work to increase understanding of this common, but often unheard of, disease among healthcare professionals, employers, people with endometriosis and their families, the public and the media.
We are a membership organisation, which means that people with endometriosis are a core part of the work we do – they run our support services, are involved in fundraising and awareness activities, direct what we do through involvement on our board of trustees, and therefore have helped to make our charity the UK’s leading provider of support and information on endometriosis.
Our work covers the following areas:
Support Services
Helpline
Local Groups
Email Service
Message-board and chat-room
Information
Endometriosis UK is the UK’s leading provider of information on endometriosis.
Our website includes a large information section about endometriosis, detailing what endometriosis is, what the possible causes are, how it can be treated, and much more. For more specific information about a particular topic, users can download our free fact-sheets from the site, or order hard copies from the office.
Our website features real-life stories from women with endometriosis, and others whose lives may be affected such as partners or family members. These stories are a useful way of sharing information and spreading awareness about the condition and the impact it can have, as well as providing a great source of support for women with endometriosis.
Endolink, members’ magazine
Endolink is a quarterly magazine that is sent to our members. It’s packed full of the latest endometriosis news, useful information on treatments - including complementary therapies, nutrition advice, tips on how to manage symptoms, and real-life stories.
E-Newsletter
We send out a free monthly email newsletter, which allows us to keep in regular contact with subscribers. The e-news features updates on our services, fundraising news, the latest endometriosis news, and allows us to advertise local group meetings.
Leaflets
Our general leaflet gives a summary of endometriosis, and is useful as a starting point for providing information to women who are experiencing symptoms. We have a leaflet aimed at employers to help them understand how endometriosis can impact upon a woman’s working life, which also suggests what they can do to reduce this impact. We also have a leaflet for healthcare professionals to raise awareness of both the condition and the impact it can have.
Information packs
We supply information packs that contain general details about the charity and endometriosis, free of charge. The packs also give details of support groups around the UK, recommended books, and our publications list. We are currently improving our information packs, and will soon offer five different packs (as opposed to one general one) in order meet the needs of women who are at different stages of the condition, or dealing with different issues.
Volunteer training
Volunteers run our free helpline, local groups, and moderate our message-board. Our volunteers therefore play a key role in the provision of our services and are provided with training to ensure they have the tools and skills required to perform their roles effectively.
Research
Although Endometriosis UK does not currently fund research, the aim is for it to do so in the future, funds permitting. Until that time we will campaign to get more funds into endometriosis research.
Raising awareness
We raise awareness of endometriosis and our work to the media, healthcare professionals, employers, celebrities and the public.
Throughout the year we take part in road-shows, where we provide attendees with information about endometriosis and make people aware of our charity and the support we offer.
Fundraising
Throughout the year we endorse a wide range of fundraising events, which we encourage our supporters to take part in. We offer support for anyone wishing to fundraise for us by sending out fundraising packs, providing advice on training, and tips on raising money.
The money raised goes towards maintaining and developing the services we provide to help empower and support women with endometriosis.
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